Duchenne Muscular Dystrophy Non-Profit

WITH YOUR HELP.
WE WILL FIND A CURE.

DMD (Duchenne Muscular Dystrophy)

Donate to Find a Cure Today

CARMINE

VINCENT

It’s Time!

With your Help, we will find a cure

The Time is Now! – It takes a village

Who We Are

We have three beautiful boys, living in the Dyker Heights section of Brooklyn, New York. Our eldest, Jayson is 16, Carmine is 14 and Vincent is 11 years old.

In 2016 we were devastated and emotionally destroyed when we learned that our two younger boys, Carmine and Vincent, were diagnosed with a rare form of muscular dystrophy Duchenne.

We noticed Carmine had trouble keeping up with his peers. On several occasions, people had commented on the size of Carmine’s calves. We had to persuade our pediatrician to test him for DMD. Reluctantly, he did the blood test and the next day he called and said you were correct, his CPK level is extremely high. We immediately did our research and found the very best, most knowledgeable doctors in the field. Sadly, when we took Vincent along for that first visit, they informed us that he was likely to have Duchenne as well.

DMD (Duchenne Muscular Dystrophy)

Latest Reads

Gene Therapy: Behind the Scenes

Unlocking the Promise of Gene Therapy

Pfizer is working to unleash the next wave of treatment innovation for patients living with rare genetic diseases.

Sarepta Therapeutics Announces FDA Approval of ELEVIDYS

ELEVIDYS addresses the root genetic cause of Duchenne – mutations in the dystrophin gene that result in the lack of dystrophin protein – by delivering a gene that codes for a shortened form of dystrophin to muscle cells known as ELEVIDYS micro-dystrophin.